Epilepsy: working together to reduce stigma
Epilepsy is one of the most common neurological disorders, affecting over 50 million people worldwide¹. Despite its prevalence, widespread misconceptions and social stigma continue to marginalize those living with the condition. Discrimination in education, employment, and social life often leads to isolation and mental health challenges. Purple Day, celebrated annually on March 26th, raises global awareness, combats stigma, and fosters inclusion for people with epilepsy.
Understanding epilepsy: facts vs. myths
Epilepsy is a chronic neurological disorder characterized by recurrent seizures, caused by genetic factors, brain injuries, or unknown origins, affecting people of all ages and backgrounds. There are a series of misconceptions surrounding epilepsy that fuel bullying, discrimination in the workplace and social isolation².
To help dispel some of the most common myths about epilepsy, Angelini Pharma has brought together four of its people - Beatriz Seco (Product Manager Prescription Medicine, Spain), Adam Różalski (Senior Product Manager RX, Poland), Viktoria Carsten (Marketing Lead, Nordics), and Elisabeth Holzinger (Brand Manager, Switzerland). In a dedicated video, they will address and debunk these misconceptions, providing accurate information and first-hand insights. The myths they will challenge include:
- Epilepsy is a lifelong illness
- Patients with epilepsy cannot have children
- Sports and physical activity are too dangerous for patients with epilepsy
- Social activities such as drinking alcohol and nightclubs are unsafe for patients on treatment for epilepsy
By sharing their perspectives, our colleagues contribute to breaking down the stigma and fostering a better understanding of what it truly means to live with epilepsy.
The impact of stigma on people with epilepsy
The stigma surrounding epilepsy can affect the quality of life of those living with the condition, in many different areas, including education, employment and mental health. Students often face exclusion and a lack of adequate support. While people with epilepsy are less likely to be employed³ due to fear and misinformation. These and many other factors mean that people effected by the disease experience higher rates of anxiety, depression, and social withdrawal, with individuals being three times more likely to experience mental health issues⁴.
Purple Day: Raising awareness and promoting inclusion
Founded in 2008 by Cassidy Megan, Purple Day aims to educate communities, debunk myths, and advocate for people with epilepsy. Purple symbolizes solitude—a feeling often experienced by those affected. People around the world are invited to host events and wear purple with over 100 countries participating to raise awareness.5 Famous landmarks such as the Eiffel tower have also shown support by lighting up purple. This, as well as the extensive educational programs in schools and workplaces, is all helping to raise awareness and reduce stigma. At Angelini Pharma we are also doing our bit to raise awareness by taking part in the 50 Million Step Initiative.
How Purple Day supports change
Educational Campaigns aim to teach the public and schools about epilepsy and seizure first-aid. Purple day also pushes for laws that increase protection and rights of those affected to reduce discrimination. Inclusivity in hiring practices and seizure management training are also fundamental initiatives for workplace inclusion.
Stigma remains a major barrier for people living with epilepsy, leading to social exclusion and mental health struggles. Purple Day plays a key role in raising awareness, challenging stereotypes, and promoting a more inclusive society. Through education, advocacy, and community support, together we can help people with epilepsy live without fear or discrimination.
- https://www.who.int/news/item/12-12-2022-new-who-brief-sets-out-actions-needed-to-improve-lives-of-people-with-epilepsy
- https://www.who.int/news-room/fact-sheets/detail/epilepsy
- https://www.ibe-epilepsy.org/employing-people-with-epilepsy-principles-for-good-practice/
- https://www.who.int/publications/i/item/epilepsy-a-public-health-imperative
- https://internationalepilepsyday.org/shine-a-light/